We had our most recent weight check yesterday, Oct 26, and Nathaniel gained 1/2 pound last week!!! He is eating a bit more every day and drinking less of the supplement when he eats more, so it is finally a good sign that something is sticking somewhere. We are continuing the acupressure massage 1x/day, but haven't been giving him the herbal supplement. I'm just glad he is asking for food more often (sometimes as a stall tactic - my little smartypants and manipulator) and eating well again. Let's keep the weight gain up.
On the other side of things, he is still as active and busy as ever. He is constantly cleaning the house with his vacuum or duster/swiffer. He is constantly on the go whether he's playing, cleaning, or sleeping. I don't know how he has so much energy and I wish I could steal some from him about now. He eats a few bites of something and suddenly is bursting with even more energy. The best part though is that he is so curious so everything he is doing helps him learn more and more about his world and he is learning more than I could have ever expected all the time.
Showing posts with label weight gain. Show all posts
Showing posts with label weight gain. Show all posts
Thursday, October 27, 2011
Sunday, October 2, 2011
No G-Tube Yet :)
I haven't posted in a while. Work is consuming my time. But good news needs to be posted.
Nathaniel was up 12 ounces 2 weeks ago, another 4 ounces last week, and another 4 ounces yesterday. He is almost up to his end of the NG tube feeding weight and at the 3rd percentile. We have gotten the green light to keep up what we are doing and monitor his weight weekly and go back to the GI in another 2 months.
Nathaniel is doing well otherwise. His development is changing all the time. He drinks his higher calorie boost supplement, continues to love his vegetables and fruits, and is tolerating his new herbal supplement drops three times a day. I also get to stop being the OT in a couple weeks when we go to the feeding clinic for an evaluation. One of my former colleagues will be assisting in conducting his evaluation, so I know he will be in good hands. I don't know what new ideas will come our way, but I will be happy to have someone else directing his "therapy". Let's hope the weight gain continues and our 2 month check-up keeps him at at least the 3rd percentile with steady gain and developmental gain and no tube yet again.
Here's a picture of our little man in the spotlight dressing up for the photo booth at Anthony's cousin Ryan's wedding a couple weeks ago.
Nathaniel was up 12 ounces 2 weeks ago, another 4 ounces last week, and another 4 ounces yesterday. He is almost up to his end of the NG tube feeding weight and at the 3rd percentile. We have gotten the green light to keep up what we are doing and monitor his weight weekly and go back to the GI in another 2 months.
Nathaniel is doing well otherwise. His development is changing all the time. He drinks his higher calorie boost supplement, continues to love his vegetables and fruits, and is tolerating his new herbal supplement drops three times a day. I also get to stop being the OT in a couple weeks when we go to the feeding clinic for an evaluation. One of my former colleagues will be assisting in conducting his evaluation, so I know he will be in good hands. I don't know what new ideas will come our way, but I will be happy to have someone else directing his "therapy". Let's hope the weight gain continues and our 2 month check-up keeps him at at least the 3rd percentile with steady gain and developmental gain and no tube yet again.
Wednesday, September 14, 2011
Something is Working!
We went in this morning for our 9th weekly weigh in since we started the feeding tube process. The feeding tube has now been out for 5 1/2 weeks and the past 5 "weigh-ins" have resulted in Nathaniel being the "biggest loser". We were not aiming for that. We were aiming for him to the the "biggest gainer" or at least have greater weight gain than he has had since he was a newborn/infant. He slowly went from his highest amount of 24 pounds even to his weight last week of 22 pounds and 4 ounces (still 1 full pound up from just before the feeding tube was placed). Today was different - hooray!
For the past week we have been doing acupressure massage with Nathaniel. He loves his massages and knows them by heart. We also added a higher calorie Boost supplement to his diet when it arrived on Friday. Daddy started using therapeutic meals and everyone else has followed suit since the end of last week. AND Nathaniel is asking for food sometimes again. He still loves to set the table and be a helper with mealtime.
So what happened today? We went into the clinic and as usual several CMAs, Grandma Betts, and mommy were all standing around for the big "weigh in". (The scale at the office is by one of the CMA pods and Nathaniel is well known at his clinic - Grandma and "Cousant" Analisa both work there and he is there often enough over the past 2 years for weigh-ins and blood work to be well known). He got on the scale and was at 23 Pounds!!!! That is 12 ounces in 1 week (we haven't seen that since the NG was placed). We all cheered. Nathaniel was sort of like "whatever" and just wanted to get his "doggy with the car sticker".
It was a triumph for us though and a relief all in one. I am filling out a lengthy packet of information to get him in for a feeding clinic evaluation. Many pages and many detailed notes from mommy the OT on there. We'll see when we get in and how much more change he has made by then.
For the past week we have been doing acupressure massage with Nathaniel. He loves his massages and knows them by heart. We also added a higher calorie Boost supplement to his diet when it arrived on Friday. Daddy started using therapeutic meals and everyone else has followed suit since the end of last week. AND Nathaniel is asking for food sometimes again. He still loves to set the table and be a helper with mealtime.
So what happened today? We went into the clinic and as usual several CMAs, Grandma Betts, and mommy were all standing around for the big "weigh in". (The scale at the office is by one of the CMA pods and Nathaniel is well known at his clinic - Grandma and "Cousant" Analisa both work there and he is there often enough over the past 2 years for weigh-ins and blood work to be well known). He got on the scale and was at 23 Pounds!!!! That is 12 ounces in 1 week (we haven't seen that since the NG was placed). We all cheered. Nathaniel was sort of like "whatever" and just wanted to get his "doggy with the car sticker".
It was a triumph for us though and a relief all in one. I am filling out a lengthy packet of information to get him in for a feeding clinic evaluation. Many pages and many detailed notes from mommy the OT on there. We'll see when we get in and how much more change he has made by then.
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