We're currently in the waiting game with Nathaniel. It has been 4 weeks off the feeding tube and he is down 3/4 pound since getting it removed. We've been struggling with meals since he had it placed, but this weekend we have maybe finally begun to move in the right direction. Yesterday morning for the first time in almost 2 months he asked to set the entire table before breakfast and ate all his meals without distress/struggle and even fed himself part of dinner (it has been almost 2 months since that last happened as well). Then this morning for the first time since getting his tube placed on July 12th, he asked for a bite of daddy's waffle and then proceeded to ask for his own. I don't want to jinx it, but I'm just hoping that all continues to move in this positive direction so that he can start to gain/maintain his new weight curve. Hopefully all the sensory stuff I am doing with him, the feeding clinic referral, and the return to a regular routine will help.
In other more positive news, Nathaniel is just as delightful as ever. He continues to talk non-stop and comes up with so many observations and comments that surprise us all of the time. His favorite things continue to be cars/trains/campers/anything that moves and anything about being outside (walks, playing in the sand and rocks, watering, and climbing/playing at the playground). We are sad for our summer to be over. It was nice to have so much time off to just spend time together, but I think he will be happy for his normal routine to return. He's excited for "school" (ECFE) and dancing to start up again as well.
Hoping to continue to post comments and pictures in the days/weeks/months to come.
No comments:
Post a Comment